Our now four-year old son Brouwer was diagnosed with a midbrain pilomyxoid astrocytoma tumor on September 2, 2015. After a partial resection, Brouwer started a carboplatin/vincristine combination chemotherapy, which proved to be unsuccessful. Brouwer then, on March 3, 2016, started a second chemotherapy regime known as “TPCV”. To date Brouwer has completed six-42 day cycles of TPCV.
TPCV has worked well from us. Brouwer’s tumor has shrunk approximately 38% from its peak, as recorded in the February 5, 2016 MRI. TPCV however has been hard on Brouwer’s blood counts and as such there is a reasonable chance that he won’t be able to complete the last two cycles of the planned eight-cycle regime. Unfortunately, due to risks of leukemia and other secondary cancers, when Brouwer stops receiving TPCV he can never again resume this chemotherapy.
Our hearts run with hope but our minds writhe in fear. We live in this perplexed state of gratefulness for each it-might-not-have-been day but also of deep longing to see, as sung on Brouwer’s fourth birthday this past Sunday, “many, many more.”
We’ll get the MRI results on Wednesday.
Please pray with us.
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