Week 64 – 11/15/16 MRI Results

We can taste it now.

We know that Brouwer, and we right alongside him, will battle this wretched tumor for as long as God sees fit to give our dear son life here on Earth.  We know that we can never let down our guard.  We must be ever vigilant; not just watching for symptoms of a re-awakened brain tumor but also in our mission to take nothing for granted.  We must be diligent to teach Brouwer about the things of Christ.  We must steadfast to care for each other as we intend, to be gracious, to be slow to anger, to be abounding in love.

And we have some assurance that we will be more faithful in these goals as the fear and havoc this disease has wrought on our lives has seared a scar on our psyche’s that, I believe, will never go away and, I hope, will serve as an ever-present reminder to see and be different than we once were.

We know this will never entirely be over.

We know the road is still long.

We get it.

But still, today, for the first time, subtle though it was . . . (whisper) . . . we could taste victory.

*****

I am very pleased to report that the MRI from Tuesday, November 15th showed a further decrease in the size of Brouwer’s tumor; which has now shrunk a total of 47% over the Friday, February 5th MRI.

*****

At today’s consultation Dr. Lulla laid out the path forward:

On either December 7th or December 14th we’ll make a determination as to if Brouwer will receive additional chemotherapy.  Then, when the chemo is done, we’ll schedule MRIs for every 3-4 months for the first year.  In the second year after chemo we’ll schedule MRIs every 6 months.  Then, in the third year and thereafter we’ll have one MRI a year.

It was likely unintentional, but that conversation, the discussion that this might one day effectively be “a distant memory” (not Dr. Lulla’s words, some may not get this reference) emboldened our hope.  The mention of a “second year” and a “third” year lifted us and caused us to let our minds run free.

It has been a good day.

*****

Our most sincere thanks for those who read these posts.  Thank you for coming alongside us.  Thank you for praying with us.  Thank you for loving us in the many ways you have.  We humbly thank and assure you that your gestures of love and kindness, in all forms, are not just much appreciated but are also food for our oft-times weary hearts.

Thank you.

11-16-16

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18 Comments

  1. What a gift you have shared. Blessings and thankful hearts are yours today.

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  2. Dan & Ginger, as we approach Thanksgiving, I am so very thankful for your continued testimony. I pray that your family experience joyful moments through this holiday season.

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  3. “As for God, His way is perfect” Psalm 18:30a

    I am so filled with joy at reading your post. This past week I took care of 2 of my grandkids, age 8 and 6. When I put them to bed each night and they said their prayers, each of them prayed for Brouwer, that God would be with him and make him well. Now I am sure their mother and father explained to them why they should do this, but it brought me joy to hear my little ones pray for your little one. We will all continue to pray for Brouwer and your entire family. We don’t understand these trials the Lord puts us through, but we continue to cling to Him for His way IS perfect.

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  4. Yay for that little man!!! And yay for that subtle taste of victory!!! What a gift in a long, hard and emotional road!! We won’t stop praying!!!

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  5. Oh, praise the Lord, for He is good, and hears the prayers of His children!! Blessings to all of you!! Brought to tears at the positive report from the MRI. 😊❤️

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  6. Pastor Bruce Hollister

    November 17, 2016 at 9:17 am

    Praising God with you today!

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  7. Jessica VanDerPuy

    November 17, 2016 at 8:42 am

    Guys, as hard as it must be…. Thank you so much for sharing these updates. What a precious victory! We are on our knees for your sweet boy and without your Facebook posts and this website we may not even know him, but we have learned so much from you guys in such a short time. God bless your family and your sweet boy. It’s so tough to see why God gives us these trials, but know that through them you are certainly strengthening others for His glory.

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  8. Jordan & Jess Hoekstra

    November 17, 2016 at 8:26 am

    So blessed to have read this post this morning. We will continue to pray for healing!

    Psalms 73:26
    “Our flesh and our heart may fail, but God is the strength of my heart and my portion forever”

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  9. “Praise the Lord, my soul; all my inmost being, praise his holy name. Praise the Lord, my soul, and forget not all his benefits— who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle’s. The Lord works righteousness and justice for all the oppressed.”
    ‭‭Psalm‬ ‭103:1-6‬ ‭NIV‬‬
    http://bible.com/111/psa.103.1-6.niv

    Praise God for these test results! Surely He is with you and will never forsake you. This journey of yours truly reinforces that message. Thank you for sharing Brouwer’s story and your emotional journey so openly – I am convinced that many (Myself and my family included) have been blessed by your testimony!!

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  10. 1331 124th Ave.
    I have tears of joy for Brouwer and his family! I will keep praying each day fervently. Love you all!

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  11. I’m so happy to learn of Brouwer’s optimistic test results! God is good!

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  12. Grateful beyond words to start hearing about the years beyond chemo. Yes, this experience has to sear into your hearts and change you forever. Good for you for being sensitive to that change. Look forward to seeing you at Andrew Peterson and giving that boy a hug!

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  13. Reading with tears of joy!!! Praise the LORD! Brouwer and your family are never far from our thoughts and prayers. Thank you for you for keeping us updated and sharing your thoughts in such a personal way over these several months, it’s been a blessing to us. Thank you!!

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  14. What blessed news! May God be praised — and may He continue to sustain you with encouraging reminders of His sovereign care of Brouwer, and of your whole family!!!

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  15. From Psalm 72

    18 Now blessèd be the Lord our God,
    the God of Israel,
    For he alone doth wondrous works,
    in glory that excel.
    19 And blessèd be his glorious name
    to all eternity:
    The whole earth let his glory fill.
    Amen, so let it be.

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  16. So very happy and thankful for this good news for you all!!! We love you guys!

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  17. Praising the Lord for this good news! Much love to you all.

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  18. What wonderful news! When I saw the update in my inbox I just had a feeling that it would bring a good report. I am so happy for all of you and now you can relax as you await the birth of the newest little addition in a very short time. Be sure to let me know how that goes, and all the particulars…..and of course, pictures!!!
    Your cousin (4th?), Ethel Ann

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