We can taste it now.
We know that Brouwer, and we right alongside him, will battle this wretched tumor for as long as God sees fit to give our dear son life here on Earth. We know that we can never let down our guard. We must be ever vigilant; not just watching for symptoms of a re-awakened brain tumor but also in our mission to take nothing for granted. We must be diligent to teach Brouwer about the things of Christ. We must steadfast to care for each other as we intend, to be gracious, to be slow to anger, to be abounding in love.
And we have some assurance that we will be more faithful in these goals as the fear and havoc this disease has wrought on our lives has seared a scar on our psyche’s that, I believe, will never go away and, I hope, will serve as an ever-present reminder to see and be different than we once were.
We know this will never entirely be over.
We know the road is still long.
We get it.
But still, today, for the first time, subtle though it was . . . (whisper) . . . we could taste victory.
I am very pleased to report that the MRI from Tuesday, November 15th showed a further decrease in the size of Brouwer’s tumor; which has now shrunk a total of 47% over the Friday, February 5th MRI.
At today’s consultation Dr. Lulla laid out the path forward:
On either December 7th or December 14th we’ll make a determination as to if Brouwer will receive additional chemotherapy. Then, when the chemo is done, we’ll schedule MRIs for every 3-4 months for the first year. In the second year after chemo we’ll schedule MRIs every 6 months. Then, in the third year and thereafter we’ll have one MRI a year.
It was likely unintentional, but that conversation, the discussion that this might one day effectively be “a distant memory” (not Dr. Lulla’s words, some may not get this reference) emboldened our hope. The mention of a “second year” and a “third” year lifted us and caused us to let our minds run free.
It has been a good day.
Our most sincere thanks for those who read these posts. Thank you for coming alongside us. Thank you for praying with us. Thank you for loving us in the many ways you have. We humbly thank and assure you that your gestures of love and kindness, in all forms, are not just much appreciated but are also food for our oft-times weary hearts.
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