Neuropathy?

As he often does, yesterday afternoon Brouwer asked that we “invite some people over”.  We obliged – five people were able to respond affirmatively and together we enjoyed a windy fall night campfire with ‘smores.  The last couple of days have continued to be largely good.  We have, however, had some indications that Brouwer may be developing sensitivity (neuropathy) on certain areas of his body.  This seems to be preventing the physical therapists from “taping” the backs of Brouwer’s knees which is supposed to help with him “locking” his left knee when he walks.  Unfortunately the “soccer boots” aren’t enough to prevent the left knee from locking so the taping is recommended.  To help address the sensitivity, the physical therapists have recommend that we brush certain areas of Brouwer’s body (arms, legs and back), every 2 hours, with a soft-bristled brush.  That’s A LOT of brushing!  Add it to the daily (and now bi-hourly) routine.

Some good news is that the Brouwer’s other chemotherapy sides effects are decreased this week – we haven’t seen much nausea or jaw pain.  Also no noticeable hair loss as this point.  Most importantly, no rash.

Please pray that chemotherapy tomorrow goes well (no rash).  Also pray that Brouwer will allow the therapists to tape the backs of his knees.  Please also continue to pray for us as we process this all.  Certainly also thank God for Brouwer’s high spirits and few side effects from the chemotherapy.

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4 Comments

  1. Be assured of our continued prayers! Frank and I like the specifics to pray for so thank you again for your regular updates. We love you all!

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  2. Christy Kowalski

    October 20, 2015 at 12:49 pm

    Noelle needs to be brushed occasionally too for her OT. She has gotten so used to doing it that she does it by herself sometimes. We are praying for you!

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  3. Praying for everything and more! Can’t wait to see you guys in a few weeks and love on that sweet boy!

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  4. We’ve got the whole family praying! Hugs!

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